Caregiver resources, support groups, and information and educational opportunities about AD
Alzheimer’s Disease Foundation
Information and resources about AD for patients and families.
National Institute on Aging/National Institute of Health
Excellent overview of AD
The AlzRisk Database & Alzheimer Research Forum
Comprehensive collection of epidemiologic reports that evaluate environmental (that is, non-genetic) risk factors for AD in well defined study populations. Includes exclusive short films from “The Alzheimer’s Project,” sponsored by HBO Documentary Films and the National Institute on Aging of the National Institutes of Health.
Office of Disease Prevention and Health Promotion, U.S. Department of Health and Human Services
Helpful educational information about health and nutrition.
Music and Memory (not-for-profit organization)
Information for family caregivers, nursing home staff and other elder care professionals to help persons with AD or other cognitive and physical challenges to reconnect with the world through music-triggered memories. Note: Be sure to view the trailer of the documentary film about Music & Memory, which was featured at the 2014 Sundance Film Festival.
Museum of Modern Art (MoMA), New York, NY (Alzheimer’s Project & Programs)
Guides on making the arts accessible to people with dementia. Also interviews with experts in the field of art, aging, and Alzheimer's disease; findings from an evidence-based research study on the MoMA dementia program; and review guides for creating arts-related programs in various settings.
MoMA Making Art Accessible to People with Dementia: Guide for Families (a free download)
www.amazon.com/I Remember Better When I Paint-Alzheimers
I Remember Better When I Paint: Art and Alzheimer's: Opening Doors, Making Connections (book)
Paperback, 2012, by Berna G Huebner.
Conveys scientific information on how Alzheimer's and other dementias affect the brain and how art and creative therapies are often able to bypass the limitations imposed by those changes and reach areas of emotion, creativity, and expression. In this story about the remarkable transformation undergone by Hilgos, a woman with Alzheimer's, her family, friends, caregivers, and doctors reflect on the role of art in helping her regain her self-esteem and connect once again with those she loves. Includes chapters written by Robert Butler, MD, founder of the National Institute on Aging, Gene Cohen, PhD, founder of the Center on Aging, Health and Humanities at George Washington University, and the individual art students who worked with Hilgos. Filled with practical information and resources for people with Alzheimer's and their caregivers. Illustrated with the delightful paintings and sculptures that Hilgos created before and after developing Alzheimer's.
I Remember Better When I Paint: Treating Alzheimer's Through Creative Therapies (DVD)
DVD / feature length international documentary film, 2009, available via French Connections Film, $30.
See description of book, above.
Your Way: How to find dignity and choice in a nursing home is a free downloadable booklet to help consumers choose a nursing home or assisted living home. It provides information on what questions to ask and what to look for when making this important life decision. At the foundation of Your Way is the belief that it is our right to receive the care we deserve and have continued quality of life, even though we are in need of assistance or nursing care.
Illinois Pioneer Coalition purpose: to improve the quality of life for individuals and staff in all care settings throughout the State of Illinois. IPC provides long term care settings with the education and tools needed to effect deep culture change, thereby transforming long term care settings into real homes and improving the quality of life for individuals and staff in various settings throughout Illinois. The education provided shall be based on the philosophy, practices, and principles of person-centered and person-directed care designed to improve quality of life for elders and persons with disabilities in our society. The Illinois Pioneer Coalition offers regional coalition building, education and training and a speaker's bureau.
Pioneer Network. The home page of the Pioneer Network full of helpful resources and information on Pioneering approaches. The Pioneer Network was formed in to advocate for person-directed care in nursing homes and other community-based settings. Person-centered care, also known as the as the long-term care culture change movement, moves away from institutional provider-driven models to more humane consumer-driven models that embrace flexibility and self-determination. The Pioneer Network believes that the quality of life and living for America's elders is rooted in a supportive community and cemented by relationships that respect each of us as individuals regardless of age, medical condition or limitations.
Brain Health Manifesto
by Ron Zec, PhD
"Staying Sharp" publications from Dana Alliance for Brain Initiatives
ASPECTS article on
by Deborah Allen