Behavioral and Social Sciences
The American Cancer Society homepage: http://www.cancer.org/ and some of its important pages:
- Cancer Survivors Network. "An amazing page of people whose lives have been touched by cancer" - patients, survivors, caregivers. It includes medical help, diets, discussions. Among other things, if you have ever wondered how a cancer patient deals with the day to day worries of when/if the cancer will return, this is one of the best places to do some reading (and many links to other sites): http://www.csn.cancer.org/
- Hope Lodge – if you live in rural America and/or need specialized treatment far from home, where can you stay if you’re not hospitalized? Where can your family stay? Hope Lodges provide free places to stay for patients and their caregivers: http://www.cancer.org/treatment/supportprogramsservices/hopelodge/index Sadly, right now there are only about 30 Hope Lodges but ACS is working on more.
See below for CareGiver Pages.
- Memorial Sloan-Kettering Cancer Center homepage: http://www.mskcc.org/mskcc/html/44.cfm
- Cure - an on-line magazine that now has a hard-copy counterpart (Heal). It excels at blending medical and patient points of view: http://www.curetoday.com/
- Cancercare - an unusual non-profit group whose stated mission "to provide free professional help to people with all cancers through counseling, education, information and referral and direct financial assistance." Among other things, the web pages tell patients about ongoing research studies and organizations that provide money to support treatment - money to the patients, not the physicians: http://www.cancercare.org/
- For Southern Illinois, “Hope is Home”, SIH’s new cancer treatment center: http://www.sih.net/services/sih-cancer-institute/
- The V Foundation for Cancer Research, founded by Jimmy Valvano and his family and, among others, ESPN: http://www.jimmyv.org/
- American Association for Cancer Education (this group has been around since 1947!): http://www.aaceonline.com/
- Journal of Cancer Education: http://www.springer.com/biomed/cancer/journal/13187
- Mayo Clinic, Cancer Education: http://www.mayoclinic.org/cancer-education/
- Coping with Cancer, from the National Cancer Institute: http://www.cancer.gov/about-cancer/coping
- This one is not for the faint of heart, but it’s a photographic essay of the scars earned by breast cancer survivors: http://www.thescarproject.org
- Association of Cancer Online Resources. Think of it as a portal for over 140 “communities” with information about various aspects of cancer: www.acor.org
- Thomas Menino was mayor of Boston, Massachusetts for a very long time. He was diagnosed with cancer that spread to his liver and lymphatic system. He began treatment when he was almost 70, then stopped treatment. This article talks about why he and other cancer patients say “enough” near the end of their lives, and why saying “stop the medicine” is not the same as giving up: http://www.boston.com/health/2014/10/24/why-cancer-patients-like-menino-stop-treatment/nsz5lXzq2Z34IbdiMEX1AK/story.html?p1=Topofpage:Carousel_sub_headline
- How does a medical professional tell a patient they have cancer? Here’s 1 procedure, SPIKES: http://theoncologist.alphamedpress.org/content/5/4/302.full
It’s important to recognize that a cancer patient comes with a support system. Far too often a physician will lay out a rigorous course of treatment (e.g., radiation on 210 consecutive days!) and then wonder why the patient did not adhere to the prescription. Who could possibly take off 210 consecutive days of work? How stressful is it to care daily for a friend or family member who needs care? How can a patient build a support and transport network? And is that their “job” or should a physician’s office or social worker be able to help? A few sources for cancer caregivers:
- Connect Caregiver: http://www.ciconnect.com/ (This page was under revision in 9/15 when we re-worked this page, so it’s hard to tell what’s going on.) NOTE: this is a commercial site, sponsored by CareInnovations, which is owned by Intel & GE. In beta testing now, beta testers will have a free 1 year subscription once it “goes real”.
- Caregivers from the American Cancer Society: http://www.cancer.org/treatment/caregivers/index
- Cancer Support Community, support for patients, families, caregivers (this is a charitable organization but “sponsored” and “funded” by many companies, including a number of drug companies): http://www.cancersupportcommunity.org/default.aspx
- Caring for the Caregiver, from the National Cancer Institute: http://www.cancer.gov/cancertopics/coping/caring-for-the-caregiver
- Search for Clinical Trials, from the National Cancer Institute: http://www.cancer.gov/about-cancer/treatment/clinical-trials/search
- Search for Clinical Trials, from the American Cancer Society: http://www.cancer.org/treatment/treatmentsandsideeffects/clinicaltrials/app/clinical-trials-matching-service?from=CSN
Pink Glove Dance: And because every page needs something to make you smile, here’s the Pink Glove Dance page: http://pinkglovedance.com Hospitals, schools, support centers, etc., dance to raise awareness and money for a cure for breast cancer.