Develop and Pilot Test Person-Centered Supportive Services

Develop and Pilot Test Person-Centered Supportive Services That Meet the Needs of Persons Living With or Those at High Risk of Developing Alzheimer's Disease and Related Dementia and Their Caregivers

Background: Illinois has created a dementia capable home and community-based service delivery system, service gaps still exist with specific populations with Alzheimer’s disease and related dementia. There are current service gaps and a critical need to further develop and expand supportive services for individuals living alone with ADRD in their communities; improve the effectiveness of programs and services targeted to individuals with intellectual and developmental disabilities with ADRD; deliver behavioral symptom management training and expert consultation to family caregivers; and develop additional person and family centered care and training to improve care for, and prepare individuals living with moderate to severe impairment and their caregivers for the future. Specialized supportive services are needed to target services to the above individuals with dementia and their family caregivers within the existing dementia-capable service system.

Project Lead: IL Department of Public Health with Wiley Jenkins, PhD serving as OPSP lead

OPSP participants: Amanda Fogleman, MEng

Collaborators: Illinois Department of Aging, SIU Center for Alzheimer's Disease and Related Disorders

Goals: The purpose of this grant is to: train Aging Network and PAS ISC agencies on ID/DD and Alzheimer’s Disease and Related Disorders; train CCU, CCP, CRP in-home workers and HDM assessors and volunteers to identify, and refer for assistance individuals who live alone with ADRD; conduct Savvy Caregiver Programs in selected geographic areas; develop behavioral symptom management and expert consultation through evidence-based Music and Memory, Opening Minds through Arts and Mental and Physical Exercise Programs; develop and deliver a TimeSlips Program at adult day centers, supportive living facilities and at other community locations; and develop and implement an evaluation of grant activities. OPSP staff will provide evaluation services.

Findings: None yet

Publications: None yet