Database and other sources for population-based research

Using secondary datasets for population-level epidemiologic, outcomes and health services research can be an effective, resource-efficient way to conduct high quality research. The following tables provide the name, sources, most precise level of geographical classification, most recent date of presentation, and a brief description of data that can be used in such research. The databases and datasets range from registries to survey data to government databases that can be used to research health behaviors, health care utilization, disease incidence, and other health related issues. The data source name of each database/dataset is hyperlinked to the source’s website which will contain more information on that source. Sources are categorized into one of five overarching categories—the Center for Disease Control and Prevention (CDC), Agency for Healthcare Quality and Research (AHRQ), National Cancer Institute (NCI), Substance Abuse and Mental Health Services Administration (SAMHSA), and all other sources. These other sources include the state of Illinois and Medicare, among other sources. This list not meant to be exhaustive, but to provide a reasonably extensive list of potential sources for secondary database research exploration. There may be some cost and/or application processes associated with obtaining these sources.

For assistance in accessing and utilizing this data, as well as Community Health and Demographic Sources (CHADS) please contact:

Albert Botchway, PhD: statistics@siumed.edu 217-545-3611  

Steven Scaife, MS: sscaife@siumed.edu (217) 545-6949 

For an introductory guide to developing and conducting research using secondary datasets, please read “Conducting High-Value Secondary Dataset Analysis: An Introductory Guide and Resources” by Dr. Alexander K. Smith and colleagues, which is available here.